Wednesday, February 19, 2014

A look at how far we've come...

Yesterday, Amelia had an appointment to get cast #6 put on.  She is doing so much better with it!  This makes me so happy and proud of her!  :)  She still cries a little when they stretch the feet into position, which is still hard, but at least she's consolable.  Of course, we're starting to get the routine down now too!  Between the snuggling, sugar water and feeding during the process, we're able to keep her a little more comfortable through it all.  Thinking of the first few appointments, I didn't know how I was going to survive each week!  God has been good!  The first night and day following are a little rough too, but knowing that helps me deal with it.  Having another doctor in on the casting has also been good.  In fact, she gave us with some really good pointers on how to keep Amelia comfortable.  This brings up another huge answer to prayer and it still amazes me to think about.  

Going back, Amelia's first appointment with her orthopaedic surgeon, Dr. K, didn't go as well as expected.  We weren't completely comfortable with him because he didn't seem very personable with Amelia and that was concerning to me since I knew we would be seeing him a lot!  He is also very new, but I tried not to let that get to me because I know that doesn't necessarily mean he's not good at what he does.  Regardless, we contemplated switching doctors, but in the end decided to stay with him.  In fact, he ended up apologizing for the first visit realizing he was a little short with us after a stressful day.  I was still a little unsure, but it turned out to be the best thing for Amelia.  At the second set of casting, Dr. Maples showed up to weigh in on Amelia's treatment and has been working on Amelia with Dr. K ever since.  Dr. Maples has been specializing in pediatric club foot for almost 30 years!  In fact, she's the Pediatric Club Foot Program Medical Director at Mary Free Bed.  Our pediatrician wanted to get us in with Dr. Maples from the start, but she was not accepting new patients.  We're not sure of the details of how and why she got involved, but nonetheless, God's work, no doubt!  We have a really good relationship with Dr. Kemppainen now too.  Sometimes when we ask for God's direction, He may not answer in the way that we think, but it's always the best!  

The plan of care going forward...Amelia will have one more cast and then on March 5, she will be having surgery to stretch the tendons in each leg; a bilateral achilles tenotomy.  This is considered a minor surgery, however they will be giving her anesthesia, which can be an issue in babies with the same condition Amelia has.  Therefore, they will be doing the surgery at the hospital with an anesthesiologist from the Pediatric Intensive Care Unit (PICU).  So please pray the surgery goes as well as expected, that the anesthesia is not an issue and God protects our baby girl from any complications.  They will then cast her after surgery for 2 weeks and then probably have 2 more casts after that.

In the next post, I'll update you more on Amelia's condition and prognosis and how the treatment is going on her hands.  I know I haven't been good at posting lately; sorry about that!  I'm going to try and do a better job of keeping up with it!  So, stay tuned!  :)    
Again, thank you for the many prayers on behalf of our Amazing Amelia!  So many of you have shared different verses with me and one of them was Psalm 71.  Leaving you with verse 14 and some pictures of Amelia's progress as of yesterday! 

"As for me, I will always have hope; I will praise you more and more."  
Psalm 71:14

Precast ~ January 15, 2014

 January 22, 2014
January 29, 2013
February 5, 2014

February 12, 2014
February 18, 2014


Ruth Kuyers said...

Wow Julie! Thanks for the update. I especially appreciate this progress pictures. Brought years to my eyes to see how far she's come. Continuing to pray for your family. Love all of you so much!

Mom and Dad said...

What a beautiful update my dear daughter. And the photos really were wonderful to see the improvement as well as how well she is growing. God's little Amazing Amelia. I love see those little beautiful feet all ten toes. Will keep praying for all of you and that God continues to surround you with blessing of family, friends and wonderful physicians on the case. God never will leave you- claim that promise honey. Love you -Mom and Dad

Mary Roedema said...

What a beautiful update Julie! Not only do we have amazing Amelia, we have an amazing God! Love you guys:)

Jeff Scripps said...

We in The Grove will be praying for that upcoming surgery! Psalm 121