More good news!

Feeling pretty tired tonight, but couldn't go to bed without sharing the good reports we received today.  Amelia's aortic root is still dilated and has not decreased in size, but it is not growing either and considering Amelia has almost doubled in size from her birth weight, this is great news!  Amelia even had some big smiles for her doctor!  However, he wanted to be sure we understood it is still very large, but we're hopeful the medication will continue to keep it stable until she's able to have surgery, hopefully when she's older (like in her 20s even).  At this point, he will keep increasing the Losartan every 2-3 weeks until we reach a dose that's recommended for patients with Loeys Dietz Syndrome.  She will also continue on the beta blocker.  We will see him again in a couple months and do another echocardiogram of her heart at that time.  Pray the good news continues! 

Tomorrow Amelia has her weekly physical and occupational therapy; pray she tolerates it well!

After we got home from the appointment today and Nels went back to work, the kids were playing downstairs, Amelia and I danced to "Praise the Lord" by the Imperials.  If you get a chance to listen to this song, it's an oldie, but goodie!  I love to just sing it at the top of my lungs because Satan is not going to win this one!   

When you're up against a struggle that shatters all your dreams
And your hopes have been cruelly crushed by Satan's manifested schemes
And you feel the urge within you to submit to earthly fears
Don't let the faith you're standing in, seem to disappear

Praise the Lord, He can work through those who praise Him
Praise the Lord, for our God inhabits praise
Praise the Lord, for the chains that seems to bind you
Serve only to remind you that they drop powerless behind you
When you praise Him

Now Satan is a liar and he wants to make us think, that we are paupers
When he knows himself we're children of the King
So lift up the mighty shield of faith for the battle must be won
We know that Jesus Christ has risen so the work's already done!